# Neurodevelopmental Disabilities * **Definition:** Disabilities that affect the development of the nervous system, impacting cognitive, social, and emotional functioning. * **Taxonomy:** Specialties / Neurodevelopmental Disabilities ## News * Selected news on the topic of **Neurodevelopmental Disabilities**, for healthcare technology leaders * 1.2K news items are in the system for this topic * Posts have been filtered for tech-related keywords | Date | Title | Source | | --- | --- | --- | | 5/23/2025 | [**Virginia behavioral hospital to close by 2027**](https://www.beckersbehavioralhealth.com/behavioral-health-news/virginia-behavioral-hospital-to-close-by-2027/) | [[Beckers Behavioral Health]] | | 2/13/2025 | [**Confido Health Secures $3M to Put AI-Powered Digital Workers on Healthcare's Front Lines**](https://www.healthcareittoday.com/2025/02/13/confido-health-secures-3m-to-put-ai-powered-digital-workers-on-healthcares-front-lines/) | [[Healthcare IT Today]] | | 12/30/2024 | [**The Health IT Needed to Implement Harris' Medicare Home Care Proposal - HIT Consultant**](https://hitconsultant.net/2024/12/30/the-health-it-needed-to-implement-harris-medicare-home-care-proposal/) | [[HIT Consultant]] | | 12/27/2024 | [**The Health IT Needed to Implement Harris' Medicare Home Care Proposal**](https://hitconsultant.net/2024/12/27/the-health-it-needed-to-implement-harris-medicare-home-care-proposal/) | [[HIT Consultant]] | | 12/12/2024 | [**Health IT Business News - December 12, 2024**](https://www.healthitanswers.net/health-it-business-news-december-12-2024/) | [[Health IT Answers]] | | 11/25/2024 | [**Catalight Partners with Nabla to Reduce Practitioner Documentation Burden and Elevate Autism and I/DD Care**](https://www.prnewswire.com/news-releases/catalight-partners-with-nabla-to-reduce-practitioner-documentation-burden-and-elevate-autism-and-idd-care-302315767.html) | [[PR Newswire]] | | 11/21/2024 | [**Quiver Bioscience Announces Publication in Nature Communications Biology Detailing Application of the Quiver Genomic Positioning System (Brain GPS) to Therapeutic Discovery in Fragile X Syndrome using Human Models and Machine...**](http://www.businesswire.com/news/home/20241121903871/en/Quiver-Bioscience-Announces-Publication-in-Nature-Communications-Biology-Detailing-Application-of-the-Quiver-Genomic-Positioning-System-Brain-GPS-to-Therapeutic-Discovery-in-Fragile-X-Syndrome-using-Human-Models-and-Machine-Learning-Analysis/?feedref=JjAwJuNHiystnCoBq_hl-RLXHJgazfQJNuOVHefdHP-D8R-QU5o2AvY8bhI9uvWSD8DYIYv4TIC1g1u0AKcacnnViVjtb72bOP4-4nHK5ieT3WxPE8m_kWI77F87CseT) | [[Business Wire]] | | 11/18/2024 | [**Prioritizing pain: Five ways to move beyond managing chronic pain - Medical Xpress**](https://medicalxpress.com/news/2024-11-prioritizing-pain-ways-chronic.html) | [[MedicalXpress]] | | 11/14/2024 | [**Community partnerships lead to more inclusive health care for neurodiverse individuals**](https://www.news-medical.net/news/20241114/Community-partnerships-lead-to-more-inclusive-health-care-for-neurodiverse-individuals.aspx) | [[News Medical Net]] | | 11/14/2024 | [**Community partners key to success of vaccine clinic focused on neurodevelopmental conditions**](https://medicalxpress.com/news/2024-11-community-partners-key-success-vaccine.html) | [[MedicalXpress]] | | 11/4/2024 | [**Black Book Research Announces 2024 Awards for Excellence in Behavioral Health IT**](https://www.newswire.com/news/black-book-research-announces-2024-awards-for-excellence-in-behavioral-22458097) | [[Newswire]] | | 10/31/2024 | [**WellSky® and NASDDDS Survey Reveals States Anticipate Challenges in Complying With New Federal Requirements for Home- and Community-Based Services**](http://www.businesswire.com/news/home/20241031031413/en/WellSky%C2%AE-and-NASDDDS-Survey-Reveals-States-Anticipate-Challenges-in-Complying-With-New-Federal-Requirements-for-Home--and-Community-Based-Services/?feedref=JjAwJuNHiystnCoBq_hl-RLXHJgazfQJNuOVHefdHP-D8R-QU5o2AvY8bhI9uvWSD8DYIYv4TIC1g1u0AKcacnnViVjtb72bOP4-4nHK5ieT3WxPE8m_kWI77F87CseT) | [[Business Wire]] | | 10/25/2024 | [**ClinGen publishes data on over 2700 genes relevant to genetic diseases**](https://www.news-medical.net/news/20241025/ClinGen-publishes-data-on-over-2700-genes-relevant-to-genetic-diseases.aspx) | [[News Medical Net]] | | 10/15/2024 | [**Diane Shao**](https://www.statnews.com/meet-the-2024-stat-wunderkinds/diane-shao/) | [[STAT]] | | 10/14/2024 | [**NEDHSA, Barkdull Faulk Elementary School Partner to Support Student Wellness and Development**](https://www.prweb.com/releases/nedhsa-barkdull-faulk-elementary-school-partner-to-support-student-wellness-and-development-302274828.html) | [[PRWeb]] | | 10/9/2024 | [**Why Behavioral Health Care Became Table Stakes For Amedisys, Bayada**](https://homehealthcarenews.com/2024/10/why-behavioral-health-care-became-table-stakes-for-amedisys-bayada/) | [[Home Health Care News]] | | 10/9/2024 | [**Harris Proposes Medicare at Home Benefit**](https://www.hcinnovationgroup.com/population-health-management/home-based-care/news/55234413/harris-proposes-medicare-at-home-benefit) | [[Healthcare Innovation]] | | 9/12/2024 | [**Behavioral Health Tech Conference Reveals 2024 Keynote Speakers - PR Newswire**](https://www.prnewswire.com/news-releases/behavioral-health-tech-conference-reveals-2024-keynote-speakers-302246891.html) | [[PR Newswire]] | | 9/5/2024 | [**New Leadership at Children's Hospital Colorado to Spearhead Largest Down Syndrome Center in the US**](https://finance.yahoo.com/news/leadership-childrens-hospital-colorado-spearhead-201300418.html) | [[Yahoo Finance]] | | 8/2/2024 | [**Digital health funding: Flo Health, Spring Health, CoachCare**](https://www.modernhealthcare.com/digital-health/top-funding-spring-health-flo-health-healx-coachcare) | [[Modern Healthcare]] | | 8/2/2024 | [**Ava Robotics, VSee Health partner to create robot with telepresence for ICUs**](https://www.mobihealthnews.com/news/ava-robotics-vsee-health-partner-create-robot-telepresence-icus) | [[MobiHealthNews]] | | 7/31/2024 | [**Advanced technology and AI used to diagnose rare diseases and birth abnormalities**](https://www.news-medical.net/news/20240731/Advanced-technology-and-AI-used-to-diagnose-rare-diseases-and-birth-abnormalities.aspx) | [[News Medical Net]] | | 7/5/2024 | [**Pomelo Care Secures $46M Series B; International Mental Health Co. Lands $20M**](https://bhbusiness.com/2024/07/05/pomelo-care-secures-46m-series-b-international-mental-health-co-lands-20m/) | [[Behavioral Health Business]] | | 7/2/2024 | [**Surrey Place and Developmental Services Ontario - Toronto Region Partner to Streamline Primary Care and Hospital Referrals**](https://finance.yahoo.com/news/surrey-place-developmental-services-ontario-134900289.html) | [[Yahoo Finance]] | | 1/9/2024 | [**Hearing the voices of Indigenous people with neurodevelopmental disabilities**](https://theconversation.com/hearing-the-voices-of-indigenous-people-with-neurodevelopmental-disabilities-218566) | [[The Conversation]] | ## Specialty Overview (Some LLM-derived content — please confirm with above primary sources) ### Key Players - **Northeast Delta Human Services Authority (NEDHSA)**: An organization providing integrated care services to enhance support for individuals with developmental disabilities. - **Diane Shao**: Physician-scientist at Harvard Medical School and Boston Children's Hospital, researching genetic factors contributing to neurodevelopmental disabilities. - **ADAPT Community Network**: A nonprofit organization focused on supporting individuals with developmental disabilities in New York. - **UCLA Health**: A leading research institution focusing on neurodevelopmental disorders, particularly in identifying genetic diagnoses through early symptoms. - **NextGen Healthcare**: A technology provider selected to enhance healthcare services for individuals affected by developmental disabilities and mental health issues. - **Boundless, Inc.**: A provider of comprehensive, person-centered care for individuals with intellectual and developmental disabilities. - **NIH**: The National Institutes of Health, which has launched programs to study the effects of ableism on health outcomes for individuals with disabilities. - **Columbus Organization**: A national leader in care coordination for individuals with intellectual and developmental disabilities, serving over 100,000 families. - **Chelsi**: Licensed Clinical Social Work Associate with extensive experience in mental health and neurodevelopmental disabilities. - **Cognoa**: A healthcare technology company that developed Canvas Dx, the first FDA-authorized diagnostic tool for early detection of autism and developmental delays in children. - **Rowan-Virtua Regional Integrated Special Needs (RISN) Center**: Dedicated to improving healthcare access for individuals with disabilities through patient-centered care and integrated behavioral health services. - **Behavioral Innovations**: A leading provider of center-based Applied Behavior Analysis therapy for children with Autism Spectrum Disorder and related developmental disabilities. - **GoodLife Innovations**: A provider of community-based services for individuals with disabilities, focusing on enhancing behavioral health support. - **GRIN Therapeutics Inc.**: A company developing precision therapeutics for pediatric neurodevelopmental disorders, including the investigational treatment radiprodil. - **Capsida Biotherapeutics**: A biopharmaceutical company developing gene therapies for developmental and epileptic encephalopathy. - **Indiana University and Purdue University**: Research institutions focusing on early diagnosis methods for autism. - **Catalight**: One of the largest behavioral health networks in the U.S., focusing on innovative care treatments for individuals with autism and other intellectual and developmental disabilities. - **Healx**: AI-driven biotech company focused on developing treatments for rare diseases, including neurodevelopmental disorders. ### Partnerships and Collaborations - **UC Davis MIND Institute**: Established a specialized vaccine clinic for individuals with autism and neurodevelopmental disabilities, focusing on inclusive healthcare. - **Golisano Institute for Developmental Disability Nursing**: Collaborating with RUSH University and the University of Minnesota to study health disparities caused by ableism. - **Global Down Syndrome Foundation and Children's Hospital Colorado**: Working together to enhance care for patients with Down syndrome. - **UCLA CARING Clinic**: Established to provide multidisciplinary evaluations and treatments for patients with rare genetic and neurodevelopmental disorders. - **NEDHSA and Barkdull Faulk Elementary School**: A partnership to enhance student support through integrated care services, focusing on behavioral health and developmental disabilities. - **Yukon Partners and Tenex Capital Management**: Supported investment in Behavioral Innovations to enhance access to care for children with developmental disabilities. - **Cognoa and Wyoming Medicaid**: Cognoa's Canvas Dx is now covered under Wyoming Medicaid, facilitating access to early autism diagnosis. - **Vanderbilt University and North Carolina State University**: Collaborating on a study involving wearable technology to enhance behavioral assessment for children with disabilities. - **Greenspace Health and Boundless, Inc.**: A collaboration to implement universal suicide risk screening for individuals with intellectual and developmental disabilities. - **Northeast Delta Human Services Authority (NEDHSA) and Black Creative Circle of North Louisiana (BCCNL)**: Partnered to host a free summer art workshop for youth, promoting art as a form of expressive therapy for mental health and developmental disabilities. - **Children's National Hospital and Virginia Tech**: Collaborating to develop precision medicine based on pediatric genomic research. - **Medidata and Cogstate**: Partnership to improve clinical trial experiences for CNS diseases through integrated digital assessments. - **Clouds of Care and TCD Capital**: Clouds of Care secured funding to innovate healthcare solutions for CNS disorders, reflecting strong investor confidence. - **Firefly Neuroscience and Takeda/Novartis**: Collaborations to enhance the use of BNA technology in neuroscience drug development. - **Beacon Biosignals and Longboard Pharmaceuticals**: Collaborating to enhance understanding of sleep disturbances in individuals with Lennox-Gastaut Syndrome. - **Sunflower Health Plan and Centene Foundation**: Announced a $200,000 grant to GoodLife Innovations to enhance behavioral health support for individuals with intellectual and developmental disabilities in Kansas. - **Eleplan**: Selected for the Innovation for All Startup Experience at CES 2025 to showcase its AI-driven care management platform for families of individuals with disabilities. - **VSee Health and Ava Robotics**: Partnership to develop an autonomous robot for telehealth in hospital settings. - **Nabla and Catalight**: Collaboration to deploy AI assistants for clinicians to reduce administrative burdens and improve patient care. - **Charles River Laboratories and Insightec**: A strategic collaboration to enhance focused ultrasound technology for drug discovery in neuroscience. ### Innovations, Trends, and Initiatives - **Genetic Testing Advancements**: Studies show that incorporating genetic testing in evaluations of pediatric patients with neurodevelopmental disorders leads to personalized care and improved treatment outcomes. - **Community Vaccine Clinic**: At UC Davis MIND Institute, this clinic has achieved a 100% success rate in vaccinations for individuals with neurodevelopmental disabilities. - **Chromosomal Microarray and Exome Sequencing**: Advancements in genetic testing methods that have significantly improved diagnostic rates for neurodevelopmental disorders. - **Wearable Technology**: Research is underway to develop devices that predict problem behaviors in children with intellectual and developmental disabilities, supported by a $1.1 million NSF grant. - **Canvas Dx**: An FDA-authorized diagnostic tool for autism, facilitating early detection and intervention for children aged 18 to 72 months. - **Genetic Research on Dyslexia and ADHD**: Recent studies reveal genetic links between dyslexia and ADHD, suggesting overlapping genetic bases that could improve educational support. - **Special Olympics Participation Study**: Research indicating that participation in Special Olympics significantly lowers diabetes risk among adults with intellectual and developmental disabilities. - **Multidisciplinary Care Approach**: A growing trend in autism care that integrates various therapeutic interventions to enhance positive outcomes for children diagnosed with ASD. - **NIH Program**: A new initiative distributing nearly $30 million to study the effects of ableism on health outcomes for individuals with disabilities. - **Parent Training Programs**: Development of programs like Well Parent Japan to support mothers of children with ADHD. - **3D Transport-based Morphometry**: Technique used to visualize brain changes associated with genetic variations linked to autism. - **AI in Diagnostics**: Use of artificial intelligence to enhance access to timely autism evaluations and improve diagnostic accuracy. - **Telehealth and Remote Monitoring**: The adoption of telehealth and remote patient monitoring is projected to grow significantly, enhancing access to care for individuals with disabilities. - **CAP-002 by Capsida Biotherapeutics**: A next-generation gene therapy candidate for developmental and epileptic encephalopathy, showing promise in preclinical trials. - **Lipid Nanoparticles for Gene Editing**: Research from UC Davis and UC Berkeley demonstrates a method to deliver genetic material to fetal brain cells, potentially preventing genetic neurodevelopmental conditions. - **Next-Generation Sequencing (NGS) in Germany**: Framework for identifying patients with ultra-rare diseases through NGS and phenotyping data, enhancing diagnostic accuracy. - **Catalight Classroom**: An online education academy launched by Catalight to expand access to innovative care treatments for clinicians working with individuals with autism and other intellectual and developmental disabilities. - **AutMedAI**: A machine learning algorithm developed to detect autism spectrum disorder early using minimal data, significantly improving early detection methods. - **Eye-tracking Biomarkers**: Study combining eye-tracking metrics with clinician diagnoses to improve autism diagnosis sensitivity and specificity. - **Artificial Intelligence in Autism Screening**: AI models like AutMedAI are being developed to screen for autism using minimal medical information, aiming to reduce bias in traditional screening tools. ### Challenges and Concerns - **Access to Care**: Systemic issues in healthcare services hinder optimal care delivery for individuals with neurodevelopmental disabilities. - **Healthcare Disparities**: Significant disparities exist in healthcare access and treatment for girls with neurodevelopmental conditions, particularly regarding vaccination rates. - **Lack of Clinical Guidelines**: Current clinical guidelines for genetic testing in neurodevelopmental disorders are insufficient, leading to delays in diagnosis and treatment. - **Diagnostic Overshadowing**: The phenomenon where healthcare providers may overlook neurodevelopmental disorders due to preconceived notions, leading to misdiagnosis and inadequate care. - **Stigma and Isolation**: Cultural beliefs surrounding disabilities can lead to stigma and stress for families of children with neurodevelopmental disabilities. - **Ethical Concerns in Treatment Options**: Recent guidelines from the AAP regarding sterilization for individuals with intellectual and developmental disabilities raise concerns about potential rights violations. - **Concerns Over Sterilization Guidelines**: Recent guidelines from the American Academy of Pediatrics raising alarms about potential rights violations for individuals with intellectual and developmental disabilities. - **Discrimination in Child Welfare**: Parents with disabilities face higher rates of interaction with the child welfare system, raising concerns about discrimination and the need for protective measures. - **Public Perception of Neurodiversity**: Mixed reactions to public displays of neurodivergent individuals, highlighting societal challenges in understanding and acceptance. - **Healthcare Access for Disabled Individuals**: Significant barriers exist for individuals with disabilities in accessing healthcare services, necessitating training for providers. - **Implementation of Olmstead Plans**: The variability in the implementation of community-based services across states continues to be a challenge for disability advocates. - **Georgia's Care System Failures**: Ongoing issues with the state's system for supporting individuals with developmental disabilities, including prolonged institutionalization. - **Healthcare Gaps for Adults with Cerebral Palsy**: Adults face significant care gaps as they transition from pediatric to adult healthcare, necessitating a reevaluation of care definitions. - **Medicaid Cuts**: Proposed cuts to Medicaid raise concerns about access to care for individuals with disabilities and the potential impact on long-term care. - **Shortage of Specialists**: Families often wait over a year for autism evaluations due to a lack of specialists. - **Home Care Industry Challenges**: Low wages for direct care workers and potential immigration restrictions threaten the availability of essential services for individuals with disabilities. - **Staffing Shortages**: High turnover rates among direct support professionals leading to service gaps and long waitlists for individuals needing support. - **Staffing and Training**: Challenges in staffing and training affordability for home and community-based services providers. - **AI Risks**: The integration of AI in healthcare may exacerbate existing health disparities, particularly for marginalized communities, including those with disabilities.